Living on the Spectrum
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Elizabeth Fein. Living on the Spectrum
CONTENTS
Introduction
Looping the Neuro
Autistic Presence
Clinical Ethnography
Quiet Hands, Loud Hands
Histories of Autism
About the Research
Chapter Summaries
About the Writing of This Book
1. The Summer of Adventure. I Could Write You a Kind of Low-Impact Character If You Wanted
You Can Go Hunting With a Knife and Fork
I Want to Tell You a Story
This Weird Urge to Stand Up and Say: These Are My People
The Beast of Judgment, the Dark at the End of Everything
The Little Kids Are Emo
The Theory of Extreme Awesomeness Ratio
To Dream of Heaven
2. Searching for a Place. Every Day Is a New Nightmare
We’ll Fix Her Up Real Good, Don’t Worry
We Had a Whole New Kid
You Ripped Apart My IEP
The Widening Domain of Emperor Ner
Can I Have a Half-Day?
You’ve Got to Look Out, La-La-La
Barely Special
3. Innocent Machines. It’s a Brain Developmental Thing, You Know What I Mean?
Who Are the People in Your Brainhood?
We Knew It Wasn’t Your Fault for Being Mentally Retarded
The Little Professors
The Value to Society of Someone Who Is Very Logical
They Act Out Because They’re Stressed
If You’re Not Capable, You Can’t Do It. So
It’s a Personal Decision That They Don’t Think It’s That Important
4. Hardwired. It’s Not Neurochemical, It’s Structural
Off the Cliff
Everything That ASPNET Advocates
It’s a Different Kind of Wiring
A Mac, Not a PC With a Virus
The Box That Asperger’s Comes In
Eradicated From the Face of the Earth Forever
An Organ That Never Stands Still
5. The Pathogen and the Package. A World in Which Suffering Because of Autism No Longer Exists
Divided Medicalization
A Perfect Description of Me
The Neurodevelopmental Turn
I Crumpled Up Autism and Put It in the Garbage
The Main Thing Was That It Had to Make Sense
You Are Your Connectome
Disease States Heretofore Unrecognized
A Different Pattern of Processing That Can Bring Tremendous Strengths
Very, Very Targeted Biological Treatments
We Will Know Where the Enemy Is
6. The Division of a Syndrome. Guess What I Did with the Doctor Today?
Having Fun in the Therapeutic World
Are My Friends Gonna Have to Have Two Tuberculosis Tests?
All Films Will Be Set at the Borders
I Look at Them as Someone Who Has Significant Social Impairments
The Creativity That Comes with Their Wiring Differences
They’re Not Patients If There’s Nothing Really Wrong with Them
Are You Going to Have Another Party?
7. The Dilemma of Cure. That Certain Special Thing About Trevor
I Think You Should Be Asking About Parental Relationships
We Need Special People to Spruce Shit Up
You Love the Kid for Who He Is
Quote Me as Saying I Want a Pill
I Think He’s Going to Need Help
Talking Fundamentally About What Is a Person
He Would Love It If He Had a Friend
8. The Sword in the Soul. Three Stories About Autism
A Lot of It Is What I See as Myself
Now That I’m With the History
Unearthing, Representing, Dividing
The Double-Edged Sword
It’s a Part of Me, They Don’t Know Where It Came From
Going Demon
Permeable Narratives, Permeable Personhoods
Conclusion
You Can Make Something
We Put Duct Tape on It So No One Gets Burned
Strength Comes in Numbers
Cleaning Up Social Town
Ad Astra, per Aspera
ACKNOWLEDGMENTS
NOTES. INTRODUCTION
CHAPTER 1. THE SUMMER OF ADVENTURE
CHAPTER 2. SEARCHING FOR A PLACE
CHAPTER 3. INNOCENT MACHINES
CHAPTER 4. HARDWIRED
CHAPTER 5. THE PATHOGEN AND THE PACKAGE
CHAPTER 6. THE DIVISION OF A SYNDROME
CHAPTER 7. THE DILEMMA OF CURE
CHAPTER 8. THE SWORD IN THE SOUL
REFERENCES
INDEX
ABOUT THE AUTHOR