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Foreword
Prologue
The call – Wednesday, 10th December 2014
Profound joy
When a child is born
Sunshine and rare disease
The younger years
The Magic Bissie Tree
High tea and puppy love
Sweet 16
Natalie’s Circle of Love
Breathlessness
Asthma, the mad Aussie and a secret talent revealed
Something is seriously wrong
The slow road to diagnosis
Reality dawns
Jenna’s journal
Going to war
Sharing the news, reaching out
Chase
Up for debate
True colours
Matric
Love will find a way
#I Need More Time
Upping the ante
Oxygen buddies
In this case, “no” is not an answer
Farewell, beautiful dragonfly
Plett Rage
New hope: Flolan and the Americans
Shooting the lights out
Painful new beginnings
Reaching for a dream
The day I almost killed my child
Sterilising liquid and puke
Emergency listed for transplant
Surprise visitors
We nearly lose Jen
#GetMeTo21
Down the rabbit hole
Presenting to Parliament
Transplant: Wednesday, 10th December 2014
Christmas and New Year in ICU
Rivonia
Nausea, nursing and seizures
Moments of relief
You’ve got to be kidding me
Mama, come quick!
An Easter full of hope
Moving Kristi
Chaos and crisis
Monday, 8th June 2015
Epilogue
Acknowledgements and thanks
The Jenna Lowe Trust
“I thought I knew Jenna’s story. I know it is one of courage and dignity in the face of unimaginable difficulty. But to read it in her mom’s words, and even in her own words, is to view it through a very different lens. This deeply moving book shows us the vulnerability of a teenager facing her own mortality, the dogged passion of a mother determined to give her child her best fighting chance, and the love of a father and sister determined to create moments of joy even in the face of their deepest fears. It is a lesson in resilience, and a real tribute to the young woman they loved so much.”
PIPPA HUDSON, TALK SHOW HOST – CAPE TALK
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The packed red SUV pulls up on the private runway at Cape Town International airport only 50 minutes after the first phone call has been made – a planning triumph – where a small jet and its two pilots, who are already preparing for take-off, are ready and waiting. The bags get loaded and James carries Jenna and her oxygen machine up the metal steps to settle her into her seat. Then he fetches the extra tanks and takes them on board. But he still can’t say goodbye to Jen. Even the pilot is choked up. The strapping young man looks at James, this fresh-faced 20-year-old trying to say goodbye to his gorgeous young girlfriend and says: “Stay, stay with your girl. We are turning this baby straight back towards Cape Town once we’ve offloaded everyone at Lanseria airport. We will ‘lift’ you home afterwards.”
And so, while Kristi and I desperately wait in George airport for a commercial plane, Stuart, Nurse Lizzie, Jenna and James take off in the small jet headed for Johannesburg, with Mary and Steve Berry and Jonathan Ackerman waving them goodbye from the runway.
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