Knowing One's Medical Fate in Advance

Knowing One's Medical Fate in Advance
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Описание книги

Modern medicine is now in a position to make advanced prognoses that chart the entire course of illness and recovery. Paradoxically, this is coupled with a new dimension of uncertainty for the patient, i.e. coming to terms with discovering they have an increased risk of a particular disease and deciding what appropriate steps to take. In this publication, renowned experts in their fields discuss these issues. The certainty and uncertainty of one’s fate are discussed from both methodological and epidemiological perspectives, using examples of diseases for which treatment and prognosis have dramatically changed. Despite profound insights into the human genome, personalized genetically tailored medicine still lies in the future. Religious, spiritual and philosophical dimensions are discussed, as are the ways in which they may help people cope with these new insights into their future, e.g. the promise of an afterlife. This publication aims to bridge the different fields dealing with this area by addressing the challenges faced and encouraging dialogue. It will be of interest to all readers who deal with ethical problems of prognosis, particularly in medicine, as well as to theologians and sociologists.

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Группа авторов. Knowing One's Medical Fate in Advance

Knowing One’s. Medical Fate in Advance

Contents

Introduction

Evolving Therapy and Prognosis in HIV – How Knowing One’s Medical Fate in Advance Can Change Dramatically

Prognosis and Advances in Treatment

Treatment Goals, Cautious Prognosis, and Perceptions

Perception Models

‘Wunderbar’ - ‘Wonderful’

Continuing Developments

‘I Will Survive this Challenge’

Prognosis Outside of Europe

Acknowledgement

Questions and Answers

References

Related to Human Cognition:Is Personalization Feasible and Desirable?

Questions and Answers

References

Ethical Decision-Making on Genetic Diagnosis Facing the Challenges of Knowing One’s Medical Fate in Advance

The ‘Informed Consent’ Model as the Key to Autonomous Decision-Making

Ethical Decision-Making Processes in Women in Conjunction with Prenatal Genetic Testing: an Empirical Study

Muriel

Zoe

Caroline

Autonomous Decision-Making as a Liberal Slant on Shaping One’s Own Future - Consequences for Theory and Practice

Questions and Answers

References

Mastering Familial Genetic Knowledge: Shared or Secret? Issues of Decision-Making in Predictive Genetic Testing

Huntington Again

Methodological Approach

The Story of Mrs Alberta - Our Overview2

Biographical Approach: ‘Revelation’ by Familial Genetic Knowledge and Dissociation from the Parental Generation

Interpretative Phenomenological Approach (IPA) and Emerging Bioethical Issues

Conclusion

Footnotes:

References

Predictive Medicine – Changes in Our View of Ourselves and Others

Introduction

Ambiguities in the Concept of ‘Menschenbild’

Predictive Medicine and the Image of Man - Has Anything Changed?

What Has Changed - From the Viewpoint of Subjective Rationality?

Does Patient Autonomy Imply a Right to Know?

Patient Autonomy as an Ideal

Which Principles Should Guide the Practice of Predictive Medical Information?

Provisional Conclusions

Questions and Answers

References

Current Challenges for the Law: Disclosure Dilemmas in Predictive Medicine

Introduction

Legal Framework in Switzerland. Right to informational self-determination, right to know and right not to know

Implementation on a Statutory Level: Federal Act on Genetic Testing in Humans

Disclosure of Genetic Data: Art. 19 HGTA

Concluding Remarks

Questions and Answers

Footnotes:

References

Fate and Judaism – Philosophical and Clinical Aspects

Introduction: Medical Ethics and Jewish Medical Ethics

Fate and Judaism

A. Philosophical Aspects: The Permission and the Duty to Heal

The Talmudic Source

Four Medieval Commentaries on this Talmudic Source

Rabbi A.Y. Kook’s Interpretation: Synthesis of Classical Sources with the Modern Challenges of Medicine in the 20th century

Conclusions regarding “Knowing One’s Medical Fate in Advance”

B. Clinical Aspects

Abortion

Truth Telling and the Patient-Physician-Relationship

Summary

Questions and Answers

References

Further Reading

Modern Medicine and My Future Life: A Christian-Theological Perspective

Introduction:The Importance of Being Religious

Individual Life and Its Future in a Christian Theological Perspective. Anonymous Fate or Destiny by Divine Providence? The Moirai

The Solon Paradox

Providence

Individual Destiny

Christian Understanding of Personal Future, Death and Afterlife. Two Formative Tensions

Reformation Theology: The Prerogative of Justification (Grace)

Enlightenment: Spiritualisation of Afterlife Conceptions

‘Holistic Humanity’ (‘Der Ganze Mensch’)

Some Consequences for Christian Bioethics of Individual ‘Future Life’ No Affront Against Modern Medical Techniques

Against Naturalism

Against Religious-Metaphysical Escapism

The Freedom of Hope

Predictive Medicine: Challenges to a Modern Christian Ethics of Individual Future Life. Classical Medical Prevention: Example of Breast Cancer

End-of-Life Decisions

The Concept of ‘Rational Suicide’ (‘Bilanzsuizid’)

Regarding Death: Fulfilment, Fragmentariness and Openness

Genetic Testing as a Litmus Test for Christian Ethics of Individual Future Life. The Mythology of Genetic Testing

A Christian Attitude towards Genetic Testing

Genetic Diseases and the Threat to Lose Identity

Predicting My Offspring: Is There a Christian Eugenics?

Questions and Answers

Footnotes:

References

Karma, Contingency, and the ‘Point of No Return’: Predictive Medicine and Buddhist Perspectives

Knowing One’s Medical Fate in Asia?

The ‘Point of No Return’: Its Relevance for Predictive Medicine

Contingency and Karma—or Why Religious Specialists Compete with Medical Specialists in Forecasting ‘Medical Fate’

‘Knowing the Fate’? Tibetan Medical Scriptures on ‘Refusing Treatment’ of Terminally Ill

Predictive Medicine: Some Views of Buddhist Specialists

Questions and Answers

Footnotes:

References

Author Index

Subject Index

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Challenges for Diagnosis and Treatment,

Philosophy, Ethics and Religion

.....

7 Hogg R, Lima V, Sterne JA, et al: Life expectancy of individuals on combination antiretroviral therapy in high-income countries: a collaborative analysis of 14 cohort studies. Lancet 2008;372:293-299.

8 Glass TR, De Geest S, Hirschel B, et al: Self-reported non-adherence to antiretroviral therapy repeatedly assessed by two questions predicts treatment failure in virologically suppressed patients. Antivir Ther 2008;13:77-85.

.....

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