Digital Health Communications

Digital Health Communications
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ECHNOLOGICAL PROSPECTS AND SOCIAL APPLICATIONS SET Coordinated by Bruno Salgues There are many controversies with respect to health crisis management: the search for information on symptoms, misinformation on emerging treatments, massive use of collaborative tools by healthcare professionals, deployment of applications for tracking infected patients. The Covid-19 crisis is a relevant example about the need for research in digital communications in order to understand current health info communication.After an overview of the challenges of digital healthcare, this book offers a critical look at the organizational and professional limits of ICT uses for patients, their caregivers and healthcare professionals. It analyzes the links between ICT and ethics of care, where health communication is part of a global, humanistic and emancipating care for patients and caregivers. It presents new digitized means of communicating health knowledge that reveal, thanks to the Internet, a competition between biomedical expert knowledge and experiential secular knowledge.

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Группа авторов. Digital Health Communications

Table of Contents

List of Illustrations

List of Tables

Guide

Pages

Digital Health Communications

Preface. Info-communication Perspectives on Digital Health Communication

Box P.1.Digital communication in terms of health or digital health communication?

P.1. The French and Quebec health systems as a heuristic context for analysis

P.2. Information and communication sciences: a theoretical corpus and methodologies for understanding digital communication in healthcare

P.3. For a critical approach to digital health communication

P.4. Digital health communication in the workplace

P.5. Digital communication in health: between strategic communication, public space and empowerment

P.6. Digital health communication: the promise of cognitive, social and emotional support

P.7. And finally, how can we take care of digital workers?

P.8. Diagnosis and treatment

P.9. References

Acknowledgments

Author Biographies

Introduction. Updating Issues of Digital Health Communication

I.1. What about digital care workers?

I.2. What about digital communication in health… ethical, empowering and emancipating?

I.3. What about new digital mediations of health knowledge?

1. Paradoxical Changes and Injunctions in an Implementation Project of the Digital Patient Record. 1.1. Introduction

1.2. Organizational paradoxes and paradoxical injunctions

1.2.1. Organizational development and paradoxes

1.2.2. Discursive approaches to the organizational paradox

1.2.3. The pragmatic paradox: a return to the systemic approach of Palo Alto

Box 1.1.Paradoxical communication

1.2.4. What divergences and convergences?

1.2.4.1. The logic of differentiation

1.2.4.2. The logic of dialog

1.2.4.3. The logic of disappearance

1.3. A case study of an implementation project for digital patient records

1.4. Resolving the organizational paradox at the individual level

1.4.1. The injunction to internal mediation: role syncretism

1.4.2. The injunction to disappear: exit or integration

1.5. Conclusion

Box 1.2.New public management and electronic patient records

1.6. References

2. Identifying Caregiver Practices by Analyzing the Use of Electronic Medical Records. 2.1. Introduction

Box 2.1.Electronic medical record (also known as a personal digital record)

2.2. Review of the management science literature on professional practices and uses of electronic patient records

Box 2.2.The concept of usability

2.3. Professional practices and the use of tools at the heart of the conceptual framework: the “instrumental genesis”

2.4. Methodology

2.4.1. Presentation of the case

2.4.2. Data collection and analysis methods

2.5. Results

2.5.1. Technical dimension of uses

2.5.2. System of instruments

2.5.3. Relationship with activity, with oneself and with others in the use of EMRs

2.5.3.1. Relationship with activity

2.5.3.2. Relationship with oneself

2.5.3.3. Relationship with others

2.5.4. Debates on the common good

2.6. Conclusion

2.7. References

3. Communication Approach to Patients’ Health Work: Remote Relationship and Intertwined Powers. 3.1. Introduction

3.2. Reconstructing patients’ work

3.2.1. Recomposed and multiplied patients’ work. 3.2.1.1. Patient work: a concept linked to very topical issues

Box 3.1.Empowerment, health democracy and health

3.2.1.2. Consumer work extended to health services

3.2.2. Relationship of care and intertwined “pastoral and disciplinary powers”

3.3. Field and method

3.4. Remote relationship and intertwined powers

3.4.1. Establishing the relationship and learning to talk about oneself. 3.4.1.1. Building proximity remotely

3.4.1.2. The call as a technology of self-revelation

3.4.1.3. An enabling power relationship in a context of loss of control

3.4.2. Intertwined disciplines. 3.4.2.1. The discipline of the sociotechnical dispositive

3.4.2.2. The discipline of daily life: the “low-salt” diet

3.4.2.3. Allowing oneself a lack of discipline

3.5. Conclusion

3.6. Acknowledgments

3.7. References

4. The Place of Care in the E-coordination of Home Care and Assistance. 4.1. Introduction

4.2. Home care coordination issues

4.2.1. Reconfigurations at home

4.2.1.1. Primary care and front-line help providers

4.2.1.2. Information and evaluation windows for social situations

4.2.1.3. Integration and case management support dispositives for coordinated pathways

4.2.2. From computerization to health informatization

Box 4.1.Focus on remote medicine

4.3. Impacts on the logic of care, roles and identities. 4.3.1. From cure to care

4.3.2. Informational and communicational approach to care

4.4. Uses and practices of the PAACO-Globule dispositive in a support network for the coordination of complex pathways in the South Gironde region. 4.4.1. Presentation of Escale Santé

4.4.2. Presentation of the PAACO-Globule solution: functionalities and organizational framework

4.4.3. Study design and presentation of results

4.5. Conclusion

Box 4.2.Literacy, digital literacy of patients, digital empowerment of users

4.6. References

5. Breast Cancer Prevention Online in a Crisis of Confidence Context: From Medical–Technical Discourse to Social Support. 5.1. Introduction

Box 5.1.Compliance and controversy

5.2. Prevention and crisis context

5.2.1. The breast cancer prevention in question: its system and players

5.2.1.1. Breast cancer prevention over time: a controversial mechanism

5.2.1.2. The multiplicity of actors in prevention: intertwined skills

5.3. Methodological choices for the analysis of an online exchange space

5.3.1. Boundaries of the field: study by the Facebook group “Cancer du sein, parlons-en” (Breast cancer, let’s talk about it)

5.3.2. Online non-participant observation

5.4. Results of ethnographic observation and lexicometric analysis

5.4.1. The emotional support registry

5.4.2. Informational input and tangible support

5.5. Conclusion

5.6. References

6. The Expert Patient in the Digital Age: Between Myth and Reality. 6.1. Introduction

6.2. Mutating health care: the professionalization of the patient

6.2.1. General framework. 6.2.1.1. Chronic diseases

Box 6.1.A perspective on chronic degenerative diseases

6.2.1.2. The patient at the center

6.2.2. The slow evolution of the patient’s status and role

6.2.2.1. From invalid to patient

6.2.2.2. The emergence of the contemporary patient

6.2.3. The evolution towards health information

6.2.3.1. Medical/health information

6.2.3.2. A plethora of information

6.2.3.3. A new form of information: life narratives

6.3. Societal changes and the emergence of the expert patient in the digital context

6.3.1. New modalities of militancy. 6.3.1.1. Challenging science and medicine

6.3.1.2. The role of associations

6.3.1.3. The legal status of the patient

6.3.2. Technological change and empowerment

6.3.2.1. Agency theory and asymmetry situation

6.3.2.2. Peer support and empowerment

6.3.3. Therapeutic patient education: the unthought-of digital culture and literacy

6.4. Conclusion

6.5. References

7. Towards an Info-communication Categorization of Expertise in Online Health Communities. 7.1. Introduction

7.2. The crises of expertise in research in information and communication sciences

7.2.1. The question of expertise in the face of the diversity of forms of knowledge mobilized in socially relevant issues

7.2.2. The place of expertise in info-communication and community-based online knowledge mediation dispositives

7.3. Info-communicational theory of the online community link as a sociotechnical context for the deployment of online expertise

7.3.1. The ICS approach to health communities

7.3.2. Specificity of the terrain and the need for a new qualification of expertise

7.4. Info-communication approaches to health expertise

Box 7.1.Historical perspective on therapeutic cannabis. Links to the Internet and social media

7.4.1. Expertise and the online health community

7.4.2. Negotiation as an info-communication process for legitimizing expertise

7.4.3. The legitimation of expertise or the production of a community consensus

7.5. Framework for the community validation of expertise

7.5.1. The three modes of legitimizing expertise in online health communities

7.5.2. Articulation of forms of expertise in the context of digital society

7.6. Conclusion

7.7. References

8. Identification Metrics Regarding Lay Expertise in Online Health Communities. 8.1. Introduction

8.2. Online health information and the notion of expertise

8.3. Data selection and presentation

8.4. Description of the measures

8.4.1. Characterizing engagement

8.4.2. Characterizing content

8.4.3. Characterizing the interaction

8.5. The multiple facets of lay expertise

Box 8.1.Criticism of the importance of quantitative methods in health, cross-approaches of quantitative and qualitative methods in health in a digital context

8.6. Conclusion

8.7. Acknowledgments

8.8. References

List of Authors

Index. A, C, D

E, H, I

K, L, M

N, O, P

R, S, T

U, W

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Отрывок из книги

Technological Prospects and Social Applications Set

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[BAZ 08] BAZET I., JOLIVET A., MAYERE A., “Pour une approche communicationnelle du travail d’organisation : changement organisationnel et gestion des événements indésirables”, Communication & Organisation, no. 33, pp. 30–39, 2008.

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