Not Dead Yet: A Manifesto for Old Age

Not Dead Yet: A Manifesto for Old Age
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Why we need to be better at ageing…Julia Neuberger addresses the question of what life will actually be like for us as we get old, and suggests answers for making our later years as good as when we were young.Britain is getting old – and fast. Due to the combination of a decline in birth rates and an increase in life expectancy we are rapidly heading towards a crisis – in health, housing, finance and long-term care.Despite this seismic shift in our demographic makeup, the way we view and treat the old has barely adjusted. It is shocking, for example, that despite less than 1 in 20 British people wanting to reside in a care home in their old age, 1 in 5 die in one.It is time that we examined how we look after ourselves as we age – and address the issues that when young we take for granted as a right, not a privilege.• Why is housing not being built so that the less mobile amongst us can continue to look after ourselves for longer?• Why when we have so much experience and no less intelligence are we not able to find work which benefits everyone?• What are we supposed to do for fun? There must be more to life than bingo and bowls!• Why is our approach to care so poor? If we neglect carers, will they not neglect us?The opportunity to make life better as we age is being missed, but not necessarily because the solutions are so difficult… Are we even asking ourselves the obvious questions?How I want to grow old is a call to arms – a manifesto on age that aims to change the way we think and to galvanise ourselves into action.

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Julia Neuberger. Not Dead Yet: A Manifesto for Old Age

Not Dead Yet

Contents

Dedication and acknowledgements

Introduction

The manifesto

1 Don’t make assumptions about my age: end age discrimination

2 Don’t waste my skills and experience: the right to work

3 Don’t take my pride away: end begging for entitlements

4 Don’t trap me at home because there are no loos or seats: reclaim the streets

5 Don’t make me brain dead, let me grow: open access to learning

6 Don’t force me into a care home: real choice in housing

7 Don’t treat those who look after me like rubbish: train and reward care assistants properly

8 Don’t treat me like I’m not worth repairing: community beds and hospitals

9 Don’t treat my death as meaningless: the right to die well

10 Don’t assume I’m not enjoying life, give me a chance: grey rage

Notes. Introduction

Don’t make assumptions about my age

Longer lives

Healthy life expectancy

Different definitions

Life satisfaction and well-being

The tyranny of a definition

Where we go wrong

Call to arms

Notes. Chapter 1

Don’t waste my skills and experience

Work

Official efforts

What kind of work?

Age discrimination

Volunteering

Barriers to volunteering

Call to arms

Notes. Chapter 2

Don’t take my pride away

Poverty

Confusion about money

Real poverty

Fuel poverty

Retirement income

The demographic ‘time bomb’

Financial products

State pensions

The UK and other countries

The UK debate

Call to arms

Notes. Chapter 3

Don’t trap me at home because there are no loos or seats

Public toilets

Public spaces

Crime

CCTV

Parks and urban green spaces

Transport

Shops, shopping centres and markets

Technology and telecare

Call to arms

Notes. Chapter 4

Don’t make me brain dead, let me grow

Informal learning

Libraries

Formal learning

Dance

Internet and computer games

Outward bound

Being unfit and isolated

Intergenerational activities

Call to arms

Notes. Chapter 5

Don’t force me into a care home

Heating and repairs

Improvement services

Adaptations at home

Moving house

Housing choice

Lifetime homes

Ghettoization

New models

Call to arms

Notes. Chapter 6

Don’t treat those who look after me like rubbish

Care provision

Care funding solutions

Care homes

Poor care

Care home closures

Care workers

Divided couples

Pain relief

Good care

Food

Dignity in care

Call to arms

Notes. Chapter 7

Don’t treat me like I’m not worth repairing

Rationing and ageism

Bed blockers and re-admissions

Policy responses

Mental health

Other mental problems

Policy solutions

Home care for people with dementia

Depression

Poor hospital care

Food

Call to arms

Notes. Chapter 8

Don’t treat my death as meaningless

Facing death clearly

Sorting things out

Good dying

Patient autonomy

Teach medical staff

Define a good death

Call to arms

Notes. Chapter 9

Don’t assume I’m not enjoying life, give me a chance

Coming alive in old age

Reflection

Politics

Notes. Chapter 10

Notes. Introduction

Chapter 1

Chapter 2

Chapter 3

Chapter 4

Chapter 5

Chapter 6

Chapter 7

Chapter 8

Chapter 9

Chapter 10

Bibliography

Index

Also by Julia Neuberger

Credits

Copyright

About the Publisher

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I could not have written this book without the extraordinary help and support of Ros Levenson, whose idea it was in part, who conducted much of the research, argued with me, briefed me, and generally helped me make it happen. Nor would it have been possible without the dedicated work of David Boyle, who took an unedited sprawling text and turned it into English – not to mention into manageable prose – as well as arguing through some of it at a late stage, and clarifying my ideas considerably. The team at HarperCollins has been supportive as ever – without Carole Tonkinson, Natalie Jerome, Jane Beaton and Belinda Budge, this volume would never have seen the light of day.

Huge thanks are due to my agent Clare Alexander, as well, dispenser of wise advice, firm encouragement, superb ideas, and lots of wine and sympathy, and to my assistant Paola Churchill, referred to by my whole family as ‘my boss’, because she tells me what I have to do, including finishing this book.

.....

In fact, the pre-election period before the May 2005 election put older people on the political agenda for the first time. But they were neither sufficiently high on the agenda, nor taken seriously enough. It was also a disappointment to find that, despite the Conservatives’ attempt to raise it, the pensions issue never really took off as central to the election campaign. Nor did long-term care, which has been a source of such resentment for many people; or even palliative care. All the parties said they would spend more, but no one said – as they should have done – that palliative care would be available for everyone who was dying, whatever condition was leading to their death.

But to start to use this latent consumer and political power we are going to have to deal with a whole range of hurdles. The media tend to go for stereotypes at the extreme – either the parachuting granny (isn’t she amazing!) or the helpless and neglected old dear (what a tragedy!). For most of us, most of the time, we are neither parachuting, nor helpless – though some of us will have some time experiencing both phases. We need to find ways of breaking out of the traps that the stereotypes represent.

.....

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