Cornelia de Mariia

Cornelia de Mariia
Автор книги: id книги: 3556060 Правообладателям     Оценка: 0.0     Голосов: 0     Отзывы, комментарии: 0 400 руб.     (5,11$) Читать книгу Купить и скачать книгу Электронная книга Жанр: Правообладатель и/или издательство: Издательские решения Дата добавления в каталог КнигаЛит: ISBN: 9785006847347 Скачать фрагмент в формате   fb2   fb2.zip Возрастное ограничение: 18+ Оглавление Отрывок из книги

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Today, the topic of special motherhood is comingto light. This is largely thanks to the internet, as it is easier to share your grief from a distance. This is how the author of this book, the mother of a girl with the rare Cornelia de Lange Syndrome, began her journey. How do youlive when there is no hope? Through small stories written in simple language, we see the acceptance of a new world. Can you reclaim your former life? And was it even life to begin with?

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From the author

Part 1. Life “Before”

Part 2. Life “After”. When There Are No Chances?!

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Recommended: Dear English-speaking reader,

As you dive into these pages, please remember that I come from a Russian background. My story, like any story, carries the weight of its original language, and while translation may alter some nuances, I hope the heart of my experiences still reaches you. Thank you for your patience and understanding as we bridge these languages and worlds together.

.....

Now, the three of us were running through the quiet corridors, the nurse leading, me following with Masha in my arms. I kept glancing down at her face, trying to see if she was breathing. We descended to the first floor, and the nurse knocked insistently on the on-call room door. Silence. She knocked again, louder and more urgently. I looked at Masha; she had started breathing slightly, and only then did I notice her lips had taken on a bluish tint. The door finally opened, and a woman, looking very drowsy and clearly just woken up, peered out.

“What’s the matter?” the doctor asked in an annoyed tone.

.....

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