Cancer is a Word, Not a Sentence

Cancer is a Word, Not a Sentence
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A six-step, practical guide that helps you through the first few weeks following diagnosis.Cancer is a Word, Not a Sentence is a straightforward guide to life after diagnosis. It explains what your diagnosis actually means, what the tests are about, what the future holds, how to judge the treatment options open to you, how to cope with the side effects, and the inevitable ups and downs you experience following treatment.Dr Buckman focuses on the day-to-day: how to talk to your partner, children and friends, and how to communicate with your medical team. There's even a section addressed to those close to you who 'just don't know what to say.' His informed, no-nonsense approach offers reliable and essential facts and advice for everyone dealing with a diagnosis of cancer.

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Miriam Stoppard. Cancer is a Word, Not a Sentence

Cancer is a word, not a sentence. Dr Robert Buckman. Foreword by Dr Miriam Stoppard

Table of Contents

Foreword

INTRODUCTION A word, not a sentence

PART ONE ‘What’s going to happen to me next?’

Cancer or the cancers? a big difference

‘Cancer’ as compared to ‘infection’

The cancer process

The ways in which a first diagnosis is made

A brief guide to the tissue diagnosis

What next?

The two questions that are most commonly asked

The principles of staging tests

The most common types of tests

Treatment: is there a ‘best kind?’

Surgery

Radiotherapy (radiation oncology)

Chemotherapy

Biological therapy (including hormone therapy)

Treatment options—when can you choose?

Balancing potential benefits against potential risks

The risk benefit analysis—a quick checklist

The seven main types of treatment plans

First, where cure or long-term control is not likely, but medium—or short-term control is very likely

Second, where long-term control is unlikely, and medium—or short-term control is possible but not very likely

First, where are the metastases, and what trouble are they likely to cause you in the near future?

Second, what are the treatment options for treating the metastases? And is the chance of achieving a remission high or low?

Third, what are the likely or expected side effects from the treatment?

Combining several approaches

‘When can I say I’m cured?’

WHAT A 60 PER CENT RESPONSE RATE ACTUALLY MEANS: A QUICK POINT ABOUT STATISTICS

‘Why can’t I have a test to tell me if there’s going to be a problem?’

WORRYING ABOUT THE FOLLOW-UP VISITS

The R.A.C.E strategy for reducing anxiety

‘Is recurrence “game over”?’

When should you find out what the next options are?

PART TWO ‘What’s treatment like?’

‘How does surgery work?’

‘What is surgery like?’

Surgical operations for staging the cancer

‘What side effects can I expect?’

‘What about long-term effects?’

‘What does it mean when the doctor says “We got it all”?’

When surgery is not an option: ‘Why can’t they try an Operation anyway?’

Common myth: ‘If the air gets to the cancer, it will spread’

‘How does radiotherapy work?’

Understanding planning: ‘What’s the first visit like?’

‘What is the treatment like?’

‘What side effects can I expect?’

‘What about long-term effects?’

Common myth: radiation damages the immune system and does more harm than good

‘How does chemotherapy work?’

Chemotherapy drugs and the growth of cells

‘What is chemotherapy like?’

‘What side effects can I expect?’

Side effects that happen with most chemotherapy drugs

Side effects that happen only with particular chemotherapy drugs

High-dose therapy with bone marrow rescue, bone marrow transplant, or stem cell rescue

‘What are the long term effects?’

‘How do biological agents work?’

BIOLOGICAL THERAPY AS AN ADJUNCT TO OTHER CANCER TREATMENTS

Getting to know your team members

‘Who are you and what do you do?’

Talking about your symptoms

Asking for information

Getting a second opinion

PART THREE ‘Isn’t there an easier way?’

‘So what’s the problem with unfounded claims?’

The upside of complementary medicine

Possible explanations of apparently inexplicable miracles

‘Can’t I try complementary medicines anyway?’

PART FOUR ‘How do I get back on track?’

Surviving versus thriving

First things first: some general guidelines

‘What good does talking do?’

Talking with friends and family (tips for the person with a cancer diagnosis)

Talking with the person with a cancer diagnosis (tips for friends and family)

The S.C.A.N.S mnemonic: an aide-mémoire for effective listening

‘What is spirituality and how do I know how important it is to me?’

Transcendence: the essence of spiritual experience

‘Whom should I talk to?’

‘What should I do?’

Bad religiosity

‘Does intercessionary prayer change the course of a disease?’

Sex as antidote

The many sources of difficulty

The taboos

Getting sex started again

‘What is hope anyway?’

Things we all hope for

PART FIVE ‘Do I always have to have a positive attitude?’

Attitude, illness and history

Coping with the unintelligible

‘Why do so many people believe you cause your own cancer?’

‘That makes sense’: the power of individual stories

Set thinking

Stress and the recurrence of cancers: some facts

Depression

The verdict: stress doesn’t cause cancers

The Bottom Line: Blaming the Patient

PART SIX ‘What can I do to help myself?’

The ‘You Are Here’ sticker

Friends

Support groups

The internet

APPENDIX I

APPENDIX II ‘Where can I get more help?’

Cancerbackup

Cancer Research UK

CLIC Sargent

The Institute of Cancer Research

Macmillan Cancer Support

NHS Direct

The Royal Marsden Hospital

Further reading

Index

Acknowledgements

Author’s note

Copyright

About the Publisher

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With Major Contributions by Dr Pamela Catton and the Medical Staff of the Princess Margaret Hospital,Toronto, Ontario

—DR JUDAH FOLKMAN

.....

‘Do I actually need all these tests?’

Staging tests are, according to some, ‘the insult that is added to the injury’. Often, they seem to do no more than delay getting the treatment started. But they do matter, and this section explains why.

.....

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