Blazing My Trail: Living and Thriving With Autism

Blazing My Trail: Living and Thriving With Autism
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Blazing My Trail is the sequel to The Uncharted Path: My Journey with Late-Diagnosed Autism, Ms. Cohen-Rottenberg's moving memoir about her childhood on the autism spectrum and her life after diagnosis as an adult. In this latest work, the author chronicles her process of creatively adapting to life with a disability, advocating for full inclusion, and reclaiming her independence, her power, and her engagement with the world.

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Rachel B. Cohen-Rottenberg. Blazing My Trail: Living and Thriving With Autism

Acknowledgments

Chapter 1. Then and Now

Chapter 2. When Medications Do Harm

Medication Withdrawal and Other Delights

Daily Interdose Withdrawals

Heightened Sensory Sensitivity

Recovering from Benzodiazepines

Chapter 3. How I Hear

My Auditory Difficulties

Visual Hearing and Frequencies That Fade Out

Auditory Patterning

Auditory Closure

Binaural Interaction

Binaural Integration

My Auditory Processing Continues to Go Awry

The Good News

The Bad News

Vocal Tones and Verbal Conversation

Moving Forward

Chapter 4. Adapting to Life with a Disability

Strategizing with Auditory Difficulties

Learning about Alternative Communication Technologies

Text Relay Service

Text-to-Text Devices

Using Visual Strategies to Sequence Tasks

Freeing Up Energy: Developing My Sense of Direction

On Difficulty and Disability

Chapter 5. Adventures in Self-Advocacy

Chasing Away Childhood Demons

Meeting the Challenges of the Autism Discourse

Defending My Psyche: On Doubt and the Doubters

Protecting Myself in a World of Guile

Requesting Accommodations: Lessons Learned on Vacation

Putting Together a Self-Advocacy Checklist

Advocating for Accommodations at Work

Disability Rights Activism: Acting for Others, Acting for Self

Working with Others on the Autism Spectrum

Speaking Out in My Local Community

Engaging with Severely Disabled Young People

Chapter 6. Deconstructing Cultural Attitudes about Disability

Struggling with Internalized Ableism

Embracing the Social Model of Disability

The Misleading Nature of the Deficit Model

On Puzzles, Privilege, and Missing Pronouns

Autism, Disability, and the Obligation to Get Well

Disorder in Society, Disorder in Self

Neurodiversity, Grief, and the Normal Minority

The Loss of the Idealized Normal Self or Idealized Normal Child

Leaving Behind One’s Own Normality

Feeling Frightened about the Autistic Child’s Future

So What Do We Do?

Chapter 7. On My Solitary Way

Bibliography

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I am indebted to several people for their support during the writing of this book.

For his careful peer review of my manuscript, I thank Bob Rottenberg.

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Running errands. I once cringed at the idea of running…an…an…an…errand. The possibility of auditory overload made me very anxious. But now, I look forward to going out and about. I like going to the post office, the bank, the art supplies store, the hardware store, and any other place without loud music cranked up. I use my earplugs for running errands, mainly to keep out competing sounds that my auditory system has to work too hard to process and manage. But if I have a question or need to pay for my items, I can converse.

Going to appointments. When I have an appointment, sometimes talking works and sometimes it doesn’t. Everything depends upon the level of ambient noise, whether the other person is in a rush and talking quickly, how many people are in the room and participating in the conversation, and whether I have time to take notes and ask for clarification.

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