An Intimate History of Premature Birth
Описание книги
Inspired by Sarah DiGregorio’s harrowing experience giving birth to her premature daughter, Early is a compelling and empathetic blend of memoir and rigorous reporting that tells the story of neonatology – and explores the questions raised by premature birth. ‘A definitive history of neonatology, written with urgency and clarity, beauty and compassion. DiGregorio is at once a clear-eyed reporter and a mother who has lived through the reality of neonatal intensive care, and her balance of the two narrative strands is pitch-perfect. A popular science book that deserves its place among the best’ Francesca Segal, author of Mother ShipThe heart of many hospitals is the Neonatal Intensive Care Unit (NICU). It is a place where humanity, ethics, and science collide in dramatic and deeply personal ways as parents, doctors, and nurses grapple with sometimes unanswerable questions: When does life begin? When and how should life end? And what does it mean to be human?For the first time, Sarah DiGregorio tells the complete story of this science – and the many people it has touched. Weaving her own experiences and those of NICU clinicians and other parents with deeply researched reporting, An Intimate History of Premature Birth delves deep into the history and future of neonatology, one of the most boundary pushing medical disciplines: how it came to be, how it is evolving, and the political, cultural, and ethical issues that continue to arise in the face of dramatic scientific developments.Previously published as Early
Оглавление
Sarah DiGregorio. An Intimate History of Premature Birth
AN INTIMATE HISTORY OF PREMATURE BIRTH
Sarah DiGregorio
Copyright
Dedication
Author’s Note
Prologue: One Birth
1. What Happened?
2. Treatments and Outcomes
3. Viability and the Zone of Parental Discretion
4. The History of Incubation. Coney Island, Chicken Eggs, and Changelings
5. The Modern Incubator, or How to Build a Giraffe
6. The Incubators of the Future. Babies in Bags
7. Dr. Mildred Stahlman and the Miniature Iron Lung
8. Dr. Maria Delivoria-Papadopoulos and the Rugged Machine
9. JFK’s Lost Baby and the Advent of Surfactant
10. The Revolutionary Practice of Listening to Preemies
11. Follow-up Care. Preemie Development Beyond the NICU
12. What Should We Do for 22-Week Babies?
13. Knowing When to Stop
14. Choice, Decisions, and the Messiness of Real Life
15. Racism Causes Preterm Birth
16. What Prematurity Means in Mississippi
17. Group Prenatal Care and the Power of Community
18. The Hidden Trauma of Prematurity
19. Grown Preemies Speak for Themselves
Epilogue
Notes
Index
Acknowledgments
About the Author
About the Publisher
Отрывок из книги
And What It Teaches Us About Being Human
And with gratitude to the nurses, physicians, and thinkers who were our partners in gestation.
.....
“You can touch her,” a nurse said, popping open one of the portholes for me. I could touch her? I put my hand into the warm incubator and gingerly placed my index finger on the sole of her one-and-a-half-inch foot. There is a photo of that moment, me in a hospital gown looking down at her through the plastic. She is only a foot or so away, but I look like I am staring into the far distance.
I didn’t think of it at the time, but I had been in a NICU once before.
.....