Becoming Citizens
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Susan Schwartzenberg. Becoming Citizens
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Becoming Citizens
Family Life and the Politics of Disability
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What was your family life like?
The families describe how there were almost no services or programs to help them learn how to care for their “mentally retarded child.” Some parents found an encouraging doctor, and some mention being visited in the home by social service workers. But most often they described how other family members, neighbors, and acquaintances helped them cope and find answers to their questions. Two mothers describe how a relative got them to recognize the disability and the task at hand. Another mother described an appointment with a neurologist, who said to her, “If you don’t toilet train this child…,” prompting her to realize what no other professional had even suggested: that it was possible for her daughter to learn. Most describe learning from within their own home-life context—with many of the family members participating in caring for the child with a disability as well as taking on extra responsibilities in the household.
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