Читать книгу Transition of Care - Группа авторов - Страница 37

QoL in adult patients with CAH has been variously reported [52–54]. The reason for this heterogeneity in QoL reporting for CAH adults is debated but could relate to variables including treatment regimen, health care provision in different countries, and genetics. We conducted a study to report on the impact of transition and specialist medical care on QoL in CAH patients [55]. We found that global QoL was not different in patients with or without transition but was better in adult CAH patients with a regular medical follow-up and a successful transition. In our study, almost a third of the CAH patients were lost to follow-up in adulthood, despite a regular care in a tertiary medical center during childhood. We also showed that transition was closely linked to regular medical care during adulthood. It reinforces the concept of a well-organized transition [56, 57].