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Data collection

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EMBMT central office currently collects data from 38 centers in the EMRO region individually on an annual basis.

The data submitted from participating centers includes type of transplant, indication, type of conditioning, donor type and source of stem cells. The registry publishes HCT regional performance data every two years. Additionally, the registry does retrospective studies on rare diseases that are more prevalent in the EMRO such as bone marrow failure. During the last 10 years, EMBMT had made several publications related to HCT in the EMRO region. Great heterogeneity exists in the capabilities of the reporting center to collaborate on data [56].

At present, approximately 2500 HCT procedures are done in the EMRO region annually with the majority being of allogeneic type (55–60%). This is because of the wider availability of related donors with the large family size that exists in most of the countries and the young median age of the population leading to more pediatric cases, obviously with more allogeneic indications.

Blood and Marrow Transplantation Long Term Management

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