Читать книгу Blood and Marrow Transplantation Long Term Management - Группа авторов - Страница 43

Approximately 30% of the reporting centers are capturing outcome data. These centers are also reporting data to other international registries like CIBMTR and EBMT.

At present, late effects and outcome data are not routinely requested or obtained by EMBMT from participating centers. Late effects are of particular importance in the EMRO region as a large proportion of the patients are from pediatric ages with highly curable malignancies and inherited disorders. Few studies have been conducted on long‐term outcome of bone marrow failure syndromes including Fanconi Anemia and Dyskeratosis Congenita and more are being done.