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Concept of long‐term survivorship

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The concept of survivorship in cancer patients was created by the National Coalition for Cancer Survivorship (NCCS) in 1986 [9]. According to the Institute of Medicine, cancer survivorship is the phase of care that follows primary treatment. However, this definition allows a wide range of interpretations, depending on the time of diagnosis, the completion of treatment, and the time interval between the diagnosis and the end of treatment of cancer. The Institute of Medicine and leaders in cancer survivorship have recommended cancer centers to examine and evaluate the setup of services for survivors. In a first step, general recommendations and the development of guidelines have been assessed for pediatric and young adult cancer survivors [10,11]. The Institute of Medicine provided a template for the four essential elements of survivorship care: prevention and detection of late effects, surveillance, interventions to manage side effects, and coordination of care and information [12]. Meanwhile, awareness for needs of HSCT survivorship care has risen, and was addressed in a workshop from the National Academies of Science, Engineering, and Medicine. The participants of the Workshop suggested to include issues on education and training, employment and work‐related concerns, financial toxicity and insurance concerns, as well as research needs [13].

Blood and Marrow Transplantation Long Term Management

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