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Challenges Coming from the Adolescent

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The adolescent may feel the fear of the unknown, of losing a privileged relationship. She/he may have a feeling of abandon. The adolescent may also fear that her/his person will not be at the center of the relationship with the endocrinologist for adults. In simple words, from being “Marc” the person who happened to have a craniopharyngioma, he will fear to become the “craniopharyngioma guy,” where his person is hidden behind his condition.

Some adolescents phrase the transition process like this : “This move is like moving out of the house, because you grew up with these people” – “Will the physician for adults understand how much my person is affected by this condition (cystic fibrosis)?” – “Will the physician for adults understand my pain (sickle cell anemia)?”

These fears need to be expressed during the consultations with the pediatrician. The latter should obtain and give the assurance to the adolescent that he will work with a physician for adults in good confidence and with a physician who has enough empathy to “understand the person beyond the disease.”

Transition of Care

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