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Challenges Coming from the Parents

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The challenges coming from the parents are of a different nature. They share the fear of their children, regarding the future physician who will take care of their children, but also the autonomy of their adolescent affected by a chronic condition. For long years, they have been the “guardians” during daily life of the care given to their children. They shared the fear of acute events and were always there to protect their children from those. They played an active part in the dialogue with the pediatrician, whereas the physician for adults will mainly talk to the patient. And nevertheless they will still be a very active and important support of the affected person.

This is so important that the only way is to accept the parents during the transition process and for the first consultation(s) with the physicians for adults. This is how again an attitude of understanding and empathy will allow a successful transfer and transition.

Transition of Care

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