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Qualitative evaluation has been conducted among IOIG participants. Key areas repeatedly voiced by group participants in response to questioning about their experience of the group and whether/how it helped relate to:

1 The relational aspects – connecting with fellow ostomates:‘It is just so nice to connect with others going through the same journey and struggle.’‘Talking to others helped me realise I wasn’t alone and some issues I had they also had.’

2 The informational aspects:‘I get tips on managing my stoma… this is so helpful.’‘I’ve learned different methods of dealing with my bag.’

The following statement from a long‐standing group participant offers a sense of what involvement has meant for many who participate:

‘I have found group to be so very helpful. In my early days it was just really nice to know that I wasn’t alone and I was a little surprised as to the amount of people and the varied reasons for their ostomy. Talking with the other members has given me an insight as to what to expect in my new life. An example of this is swimming … others said they go every day and that when I finally took the plunge – I would look back and wonder why I was so worried. I took the plunge and they were absolutely right! Another is travelling. I have listened to others talking about how they travel with their ostomy. I have yet to travel overseas but have done a few nights away now, so I’m getting a bit more confident. Just going to the meetings has given me more confidence, and I now feel that I am ready to talk about my experiences and help any newcomer to the group.’